Other Groups for Blind Parents?

Category: Parent Talk

Post 1 by VioletBlue (Help me, I'm stuck to my chair!) on Sunday, 10-Jul-2016 17:06:45

Hello, informative people. *smile*

I haven't seen anyone ask about this in some time, and I need recommendations, please. Are there any currently active email lists or message boards, in addition to these, for blind parents?

I did see, further down, mention of a Facebook group. I am not on FB, so wonder if there are any other lists. (I will sign up to FB if I really must, but my last effort to use FB was so overwhelming I gave up. That was a few years back, maybe it's easier now? Hmm.)

I did try to Google, and saw only forums for parents of blind children, which is not what I'm after! Grr!

We are expecting twins early next year, (twins! I can barely believe it, still.) and they're first babies; I really need to learn all I can. I'm reading every book I can get my hands on, but tips and discussion from other visually impaired parents would be even more helpful, particularly since I live several states away from family, and don't have reliable or close friends here to call on.

Thanks for any help.

Post 2 by turricane (happiness and change are choices ) on Sunday, 10-Jul-2016 20:24:35

congratulations!!!!!!!!! you are embarking on the most exciting, joyous, frustrating, and fun journey of your life. although i don't know of any parent groups off hand, i will talk to my daughter who is also blind and pass on any she has. another great resource are the parenting courses offered by Hadley institute or whatever their burdensomely long name is now. when my daughter was expecting, we took their first class about baby care together. true some of the info is outdated. the teacher has parent forum calls every week. students can get together, ask questions, and share experiences. hope this helps and i'll get back to you with more information.

Post 3 by Smiling Sunshine (I've now got the bronze prolific poster award! now going for the silver award!) on Sunday, 10-Jul-2016 21:05:32

Facebook is definitely easier to use now, especially if you have an iPhone. The app is easy to use and has relatively few glitches. Also, if you visit the site m.facebook.com, you'll find it super easy to use. There's a group there called Blind Parent Alliance.
If you want help with fb, let me know. That's the only one I know of.
I've already squealed about your twinkies when we played cards but here's your Zone congrats. Squeeeeeeeeal!

Post 4 by turricane (happiness and change are choices ) on Sunday, 10-Jul-2016 21:26:14

i just got off the phone with my daughter. she concurs with domestic goddess that the face book one called blind parent alliance or another one called blind parent connection are active and have good sensible advice. if you have a guide dog, there is one on f.b. called mommies with guides that she has found helpful. the only one she knew of that wasn't on f.b. was the nfb parents forum or something like that. at the risk of starting a firestorm she said they are very opinionated and short on kindness.

you also might want to think of getting involved with list serves for parents of multiples. let's face it, many of the issues you may encounter are unique to raising twins. not many blind parents are in your shoes. so, you might want to seek advice from these groups

hope this helps. enjoy your day.

Post 5 by VioletBlue (Help me, I'm stuck to my chair!) on Sunday, 10-Jul-2016 21:32:01

DG, oh yes, you did! *grin* It was the absolute best reaction I got from anyone, and it made my day. thanks for offering to help with Facebook, too. K, I'll give it another try with the mobile site; I guess i have more incentive to bother with it, now. LOL

Turricane, thank you as well for your suggestion of the Hadley material, I'll look into it. And please do let me know what your daughter says. And I see you're also in Washington state! I'm in Olympia.

Post 6 by VioletBlue (Help me, I'm stuck to my chair!) on Sunday, 10-Jul-2016 21:35:30

Ah, we must have been posting at the same time, turricane. Thanks so much for checking. Ok, I'll certainly look those up. (and btw I'm not part of NFB, so not bothered by comments on them. *smile*)

Post 7 by Ed_G (Zone BBS is my Life) on Friday, 15-Jul-2016 14:36:43

Congratulations! The NFB Blind parents group is worth joining in my view. I
don't believe you have to be a member in order to join, and I haven't noticed
kindness to be in particularly short supply.

Post 8 by VioletBlue (Help me, I'm stuck to my chair!) on Friday, 15-Jul-2016 23:27:44

Thanks, Ed. I'm glad to hear they invite anyone to join. I'll probably check it out and see what I think. Everything's a help.

Post 9 by Damia (I'm oppinionated deal with it.) on Friday, 09-Dec-2016 9:43:30

i'm sorry, this looks really bad. I'm using dictation on my phone, and for some reason it's
giving me a very hard time about editing. I don't know why.

Post 10 by VioletBlue (Help me, I'm stuck to my chair!) on Friday, 09-Dec-2016 17:44:59

Looks fine to me. Unless it swallowed the content of what you meant to post... I don't see anything pertaining to the topic, if you intended to add something. *smile* And on that, I'd still be glad to know about any other groups there may be. I really dislike FB...not the groups there, but FB itself.

Anyway, my twins will be here in six short weeks!

Post 11 by Damia (I'm oppinionated deal with it.) on Saturday, 10-Dec-2016 14:42:50

if you or anybody else wants to be added to either of the above that is totally fine, but
please private message me. The WhatsApp stuff has my phone number, and for some
reason I don't want to put that publicly on this page…

Post 12 by Damia (I'm oppinionated deal with it.) on Saturday, 10-Dec-2016 14:44:18

i'm using dictation because I'm accessing the site from my phone. I have started a
WhatsApp group, and a Roger group.

Post 13 by write away (The Zone's Blunt Object) on Saturday, 10-Dec-2016 15:07:34

Hey Violet Blue! First, congrats on the twin bundles of joy!! hahah. Any baby news is great news in my book. So glad you're so enthusiastic about learning and connecting with other parents. I'm in the Blind Parents alliance group on FB and it's a fantastic group. Not only active but always supportive and full of good info and comeraderie. It used to be more active a few years ago but it's still a very stable group.
Also, i'm always happy to chat with a new mommy or new mommy to be, as it were, and help out in the advice department or just be a sounding board. If you do happen to make it over to facebook, feel free to friend me. Also feel free to send me a PM on here if you want to chat.
Congrats again!! It's all the nerves and the anticipation times too, but all the joy times two as well. lol